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Soma Salah Has Passed Away Due to a Blood Clot in Lungs (b. July 24, 2009 – d. January 10, 2010)

January 11, 2010 by Jeremy 

Soma and mom waiting for surgery

It’s with a heavy heart that I write today to say that Baby Soma passed away at 11:45 p.m., Sunday, January 10th, 2010. I had just gotten off the phone with the church in Texas that funded her surgery and given them the update about her serious condition, while thanking them for taking a risk on her surgery. I didn’t know it at the time, but as they finished their lunch in Texas, Soma’s life was on the line in Istanbul.

It was a blood clot in her lungs – something for which the ECMO machine couldn’t compensate. The surgeons left the comfort of their homes and families in the middle of the night to respond but there was nothing to be done.

Last week I said that the Preemptive Love Coalition was not a heart surgery organization, as though chalking up another heart surgery was of some importance. I said we were a HOPE BANK where parents come for hope transfusions – a global family alongside whom Iraqi families could stand in the face of hopelessness, and finally see light at the end of the dark night. And I said that it was for long-term impact that we had decided to take the risk on Soma’s surgery.

Soma waiting for surgery w/ Jeremy

So how should we understand our decision today? Did we make the right choice? Did we hasten her death? Was it worth it? Was it a failure? Are we complicit?

Everyone will judge us by their own criterion. Indeed, our own answers and emotions have run the gammut this week. This was a huge surprise for us. We had braced ourselves for long-term loss. We were entirely unprepared for loss in the short-term (even though the doctors had only offered a sobering 65% chance of her surviving ICU).

From an organizational stand point, I owe you an answer as to whether or not we count this as a success or failure so you know what to expect from us in the future.

1. This is a failure. We don’t exist for heart surgeries. We exist to impact the children who are most “impactable” for the long-term. In fact, we turn many children away because their long-term well-being is best served by non-surgical solutions. All other things being equal (and they never are), we would use our limited resources to offer surgery to a child who is most likely to be alive with a healthy heart in sixty years before we help a child who will be hanging on by a thread with a dying heart at twenty. In that sense, we invested our money in a bit of a gamble with Soma because we knew that there were other kids back in Iraq who were more highly “impactable.” It would be easy to argue that we didn’t make it past good intentions this time and that this was an “impact fail.” We welcome that critique. And if that is how you’d like your money invested, we are here to put your money to work. At the same time…

Soma Waiting for Tests Before Heart Surgery

2. This is a success. The Preemptive Love Coalition consistently offers hope, help, and life-saving heart surgeries to children that have been rejected by one or more of the other options available to them. Whether it is a question of resource allocation, ethical priorities, or surgical skill, many of the lives we have successfully saved have been turned down by the government, local, or international groups – including Kadeeja, Heran, and Ahmed . We were – as far as anyone knew – their last chance; their last hope. Soma was one of these.

We spoke seriously with Soma’s parents about the risks. In the end, it was not really the Preemptive Love Coalition who decided to do the surgery. What we did was give them the green light to use our funds and choose for themselves. They chose to risk it and in that limited sense, we gave the family what they asked for – a chance at life. And that chance – that hope – is precisely what they had not found in any other government, hospital, or organization. We told them We love you. You matter to us and to God.. From the hope perspective; from the love perspective, this was not a failure. We chose to love; and love deeply.

Soma is Beautiful Baby from Iraq

3. Still, this is a wake up call. We have asked you a number of times what kind of organization you would have us be. Your overwhelming answer is that you’d like us to be people of the last chance. Some families in Iraq are unnervingly content to sit by and deny their children are dying. We’ve seen it a number of times. It defies all reason. But many more are ready to risk it all for a chance to see their 7 month old learn to crawl, go to school, and marry someday. For those families, you’ve declared your intention to stand by their side. And we have used your financial gifts to fulfill your wishes.

Soma stands as a monument of hope for other Last Chance Children. We don’t have to burry her story with her body for fear that it will reflect negatively on our work; for fear that fewer Iraqi children will be helped because of the “bad press.” To us, this isn’t bad press. This is love in motion.

Jon Foreman sings, “If it doesn’t break your heart it isn’t love.”

This is a wake up call because there are going to be more little babies like Soma that break our hearts. Brace yourselves. If you’re in this for the long haul with us, we can promise you:

  • 1. We will give it everything we have and we will give families HOPE and a shot at life.
  • 2. We will see more death.
  • 3. We will love until we bleed out and have nothing left.

With you,

Jeremy Courtney
Executive Director
jeremy [at] preemptivelove.org





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Jeremy Courtney lives and loves in Iraq as a co-founder and Executive Director of the Preemptive Love Coalition. He's also the father of two spectacular children, and married to the lovely Jessica Courtney. When not absorbed in PLC work he can be found writing songs and singing about hope and future. Follow Jeremy on Twitter: @JCourt.

Comments

One Response to “Soma Salah Has Passed Away Due to a Blood Clot in Lungs (b. July 24, 2009 – d. January 10, 2010)”

  1. Jayson Harraden on September 1st, 2011 10:22 pm

    John and Grant need more shoutouts from Gammons and Neyer. Its the only way anyone is going to hear anything reasonable about this organization over the waves of PR bullshit that KNBR, the Chron and the Merc keep spewing everywhere.

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