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ADVOCATE OF THE WEEK

March 31, 2010 by Cody 

Advocate

Meet PLC’s latest Advocate of the Week, Dony Costa.

I had the privilege of talking with Dony in the beginning of 2010. As Dony was sharing with me all that he’s doing to advocate on behalf of PLC, I was impressed, but as he started to share with me more of his personal story, I was blown away. Here’s an excerpt from one of our talks, see for yourself why Dony’s our Advocate of the Week:

Alright, Dony – tell us more about yourself. Who is Dony Costa?

Since I could walk I could skate. I was a very active kid, Ice Hockey being my passion ever since my first hospital visit in 1989 when the Los Angeles Kings Hockey team came in to visit kids who were staying at the hospital. I continued to play hockey until the age of 19 when I was diagnosed with Congestive Heart Failure. Within the first year, I was in the hospital receiving blood transfusions as the doctors fought to keep me alive on the surgery table. My heart was not strong enough to come off of bypass so that was when my first internal Pacemaker was implanted. I began to live a normal life, staying in sports, going to school just like the other kids until I had to have my pacemaker changed once every six years.

In October of 2008 I started to have trouble breathing so I went to my doctor to have it checked out. I couldn’t even fall asleep because it was so hard to breathe. It got so bad that I slept in the shower for about a month with hot water running so it would open up my lungs. (My Mom wasn’t too happy about that when she got the water bill!) Then I had my mom drive me to the ER. My heart was enlarged twice its size, almost a full centimeter which I guess is a substantial amount of ones heart to grow in the matter of months. I was rushed to surgery but because of how weak my heart was they couldn’t put me under all the way for fear of not being able to bring me back from the anesthesia. A Dual chamber pacemaker/defibrillator was implanted and yes, I did wake up.

My doctor gave me a year to live on the heart I had until I would need a transplant. My doctor told me I would be out of breathe if  I walked outside to get the mail. My doctor told me my heart was so fragile it could give out if something scared or shocked me. My doctor told me I would have to be put on disability because I could not work or go to school. All my doctors decided to let me go home on Christmas Eve because they TOLD me it would be nice to spend my last Christmas at home.

That year I decided to live.

What made you become an advocate of PLC?

The aspect I love about Preemptive Love is the sincerity of each case and that each one is taken seriously. I love that they not only help pay for the life saving procedure but also for the family to be there with their child. Going through what I did, I know my spirits would have been down to the point of maybe not getting better because my family wasn’t there. I can not stress that fact enough. And I love the follow up that PLC does with each child.

When you come visit us in Iraq, what will you tell these kids with the same heart condition that you have?

If I could sit down with one of these kids I would gladly tell them my story and tell them how important it is to have family around and keep your mind set high. I would tell these kids no matter how bad their condition is, that there is always hope, even for the lost cause cases like me. Finally I would tell them that I am playing Hockey. I am cycling. I am employed. I am getting ready to go back to school. I am doing all this on the same heart GOD gave me.

Never lose hope.






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Cody Fisher is the co-founder and Development Director of the Preemptive Love Coalition. He moved to Iraq in 2007 where he met his wife and since then they've been waging peace and mending hearts across Iraq. His passions are photography, peacemaking, and food that doesn't come out of a can. You can follow him on Twitter: @candmfisher.

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