1: What are you trying to accomplish?
2: What's your evidence that you can accomplish it?
3: How is it possible that you can provide an open heart surgery in Iraq for less than $1,000? Is that the full cost?
4: So is that the same thing as saying that my donation doesn't really make a difference? That the "up to 85%" funded locally by those inside Iraq is all that is really necessary to make this work?
5: Any other costs?
6: What is the bottleneck to more surgeries: money or skilled labor?
7: I'm skeptical of non-profits and charities because they always seem to be asking for more money. How can I be sure that Preemptive Love Coalition has "room for more funding" and that I'm not paying into a huge savings account, "Rainy Day Fund", or something similar?
8: Do you have enough volunteer surgeons available for unfunded Remedy Missions? (i.e., are there trips that you could fund if you had more money, or is there a labor bottleneck?)
9: Many heart surgeries require follow-up treatment (including additional surgeries). Do you have a way of providing these to patients?
10: How do you assess whether surgeries are completed competently and appropriately?
11: What is the rate of complications during and following surgery?
12: How do you assess whether surgeons are performing additional surgeries that they would have not had the funding or motivation to perform otherwise?
13: How do you assess whether surgeons are charging their patients for the surgeries you fund?
14: Do you follow up with the surgeons you've trained to assess whether they are correctly applying their training?
15: What information is available on the activities - and competence - of the surgeons you've trained?
16: Where do surgeons work after completing training? Do they serve poor patients?
17: How much do you spend each year on "program" expenses and how much on "overhead?"


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 Q: What are you trying to accomplish?

A: Train Iraqi heart surgeons and nurses so they can eradicate the backlog of tens of thousands of Iraqi children waiting in line for lifesaving heart surgery. [Back to Top]

 Q: What's your evidence that you can accomplish it?

A: Each year we continue to increase Iraq's total number of pediatric cardiac surgeries with new surgeries in Iraqi centers that would not - indeed could not - have been accomplished otherwise. Ministry of Health (MOH) officials speculate 500 surgeries were accomplished in 2009 (of which we provided 23 - 4.6% - outside the country). The addition of our 82 surgeries in FY 2010 - to the 500 baseline - for a total of 582 approximated surgeries, represents an increase created by PLC of 14% over 2009. In FY 2011 we anticipate increasing Iraq's total number of pediatric cardiac surgeries to at least 719 (or another 19% over FY 2010 directly attributable to our surgeons and our training).

Each year the local teams with which we work will become more proficient, and each year they will independently take on a larger case load than they could have the year before. None of these figures yet account for that additional output.

In March 2010 the Iraqi Ministry of Health asked us to expand our work to three additional sites. In May 2010 we began additional discussions about establishing a fellowship program in which international surgeons and nurses would take up residence in the Iraqi system to train locally for 40 weeks out of the year.

Our model does not rely strictly on volunteers because the level of need in Iraq outstrips what we could reasonably supply through volunteer labor alone. Accordingly, we set our budgets so as to actually contract the international surgical and nursing staff we need to accomplish our mission.

Sure, this increases the cost-per-mission (and thereby, cost-per-child) over early "mission" models in which volunteerism was idealized and training was not necessarily prioritized. But our contract labor + volunteerism model is inarguably the only way to create a nationwide quarterly training program and fellowships inside Iraq with international experts across approximately 6-8 surgical sites. Moreover, our model does not face the same sluggishness of learning that other surgery organizations suffer because we do not have the same rates of turnover; we have incredible consistency across our programs and missions. [Back to Top]

 Q: How is it possible that you can provide an open heart surgery in Iraq for less than $1,000? Is that the full cost?

A: The "less than $1k" numbers we routinely publish represent the amount in "program costs" we spend from our international donor money. The figure does not necessarily account for every single management, overhead, or fundraising expense.

Our total expenditures for FY 2010 were $188,919. We performed 82 surgeries during the same period for a per child total of $2,304 (though this data is a bit moot moving into 2010-11 as we abandon our very expensive "surgery exports" program(s) in Turkey, etc. and focus henceforth on more cost-effective in-country surgeries alone).

When all of our Remedy Mission partners are taken into consideration - including the Iraqi Government, medical companies that donate medicines and supplies, and local organizations - the real Remedy Mission cost to all donors is in the range of $5,400 - $7,000. Put another way, up to 85% of the total cost of a single surgical/training mission is now subsidized by local, Iraqi constituent institutions. [Back to Top]

 Q: So is that the same thing as saying that my donation doesn't really make a difference? That the "up to 85%" funded locally by those inside Iraq is all that is really necessary to make this work?

A: There is not a single site across Iraq for which our Remedy Missions are fully funded. If we fail to provide our 15-19% of the overall budget, Remedy Missions fail, surgeons and nurses do not get trained regularly, on-site audits from our international team do not happen, up to 20 children are delayed from receiving surgery, and a few may even die or become inoperable. Your role in funding the remaining 15-19% is as critical in the short term as any other entity. A single Remedy Mission is binary - it either happens or it doesn't. Your money makes it happen. But our goal is to continue to graduate all our programs so they are 100% funded locally in the next 5-10 years. [Back to Top]

 Q: Any other costs?

A: Our numbers per Remedy Mission do not account for "indirect costs," such as the cost (or value) of our volunteer medical staff from around the world, costs to local healthcare systems, the cost of a family to travel to the surgery site, the opportunity costs of lost income for families as they wait for surgery, etc. The reason we think it's important to note this here is because lifesaving is actually quite difficult. Building a pediatric cardiac surgery system for the entire country of Iraq is laborious and full of complexities. [Back to Top]

 Q: What is the bottleneck to more surgeries: money or skilled labor?

A: People often assume that the biggest need is more Iraqi heart surgeons. We could use a few more, but the real bottleneck is skilled nurses, technicians, and non-surgical physicians. A surgeon is only as good as his support staff. One of our biggest challenges is training pediatric cardiac intensive care nurses. To date, we haven't found a better model than our Remedy Missions through which we bring quarterly hands-on training to local nurses (and surgeons) in Iraq. Rather than exporting the nurses to Europe or the USA for training (whose medical systems barely resemble the Iraqi system), we train them with what they have on hand in their local environment. [Back to Top]

 Q: I'm skeptical of non-profits and charities because they always seem to be asking for more money. How can I be sure that Preemptive Love Coalition has "room for more funding" and that I'm not paying into a huge savings account, "Rainy Day Fund", or something similar?

A: For the record, we are skeptical of non-profits as well! In 2012 PLC needs $350,000 on hand at any given time to cover our cash flow needs for up to three Remedy Missions per quarter. We are still 30% under-funded against that goal. In addition to cash flow needs, we still require 15-19% funding on most of our missions after local sources contribute their portion; we have un-funded pilot programs in new cities where local doctors have been requesting our help (but where weve yet to woo local philanthropists or health directors); and we have research and social service initiatives through our Followthrough program that require funding at present because we have not yet sought local funding for those initiatives (seeing as how they relate mostly to our Monitoring & Impact Evaluation objectives). Please see our "Funding Gap" page to look deeper into our anticipated program costs, the sources of funding we are counting on, and the funding gap between the two for the next few years. [Back to Top]

 Q: Do you have enough volunteer surgeons available for unfunded Remedy Missions? (i.e., are there trips that you could fund if you had more money, or is there a labor bottleneck?)

A: Great question! We use a hybrid volunteer/staff model. Roughly 25-30% of any one of our Remedy Mission teams is employed by the International Children's Heart Foundation (typically the surgeon, scrub nurse, anesthesiologist, ICU doctor, and often a part-time ICU nurse). The remainder of the team typically comprises volunteer physicians, technicians, and nurses from across the world. Because the hardest-to-come-by positions are contract labor for us and NOT volunteers, we have never failed to run a mission for lack of personnel. We have only cancelled or turned down a request for a future mission due to lack of funding. [Back to Top]

 Q: Many heart surgeries require follow-up treatment (including additional surgeries). Do you have a way of providing these to patients?

A: Yes, we do. Our model dictates quarterly visits to each program site (a hospital inside a regional hub). Our reliance on local cardiologists ensures that the local team prioritizes and almost entirely sets the agenda for patient selection (within a development curricula) - after all, Iraqi doctors are the ones who are most intimately connected to the patients and their daily progress! When a local cardiologist sees a child who has either (1) deteriorated and requires another intervention or (2) advanced as expected to the next step of a complex, staged intervention, the child is prioritized for follow-up treatment. [Back to Top]

 Q: How do you assess whether surgeries are completed competently and appropriately?

A: Because we are a broker and play a combination administrative and financier role in the coalition of partners working in Iraq to develop pediatric cardiac care, we are able to stand in-between the local surgical team and the international surgical team (whom we contract as a third-party to train and perform surgeries in Iraq). If the local team or health directorate suspects a lack of competence in the international team, a cavalier attitude, or a single poor judgement call, our role is to be the go-between - to be the advocate for the local healthcare providers vis-a-vis the international surgical team.

Similarly, if the international surgical team feels pushed by the local surgical team to perform procedures with which they are uncomfortable or for which they think the local system is ill-prepared, they are able to refuse children for surgery and/or use us (PLC) as a go-between.

The checks-and-balance between the two teams helps us ensure surgeries are performed in a competent, appropriate manner. [Back to Top]

 Q: What is the rate of complications during and following surgery?

A: We report our in-hospital and 60-day mortality after each Remedy Mission. You can finds those numbers here. We also produce reports after each Remedy Mission detailing the trip, including data on intraoperative complications, post-operative complications, and mortality. You can find those reports here. We are also deliberately raising the funds necessary to help us bring our various heart hospitals into compliance with the International Quality Improvement Collaborative for Congenital Heart Surgery in Developing Countries. If this kind of quality improvement and reporting initiative interests you, we are currently looking for financial partners for our Followthrough program. [Back to Top]

 Q: How do you assess whether surgeons are performing additional surgeries that they would have not had the funding or motivation to perform otherwise?

A: Pediatric heart surgery in Iraq is almost nonexistent without our work. There are two active programs for relatively simple surgeries (one in Erbil and one in Baghdad). Local surgeons claim that combined they perform no more than a few hundred pediatric surgeries a year. In every location where we work, pediatric heart surgery is effectively nonexistent. Therefore, every surgery performed at our program sites (both when we are present and when we are not) are "additional surgeries" that they would not have had the SKILL to perform without the FUNDING we employed to train them in their local environment. [Back to Top]

 Q: How do you assess whether surgeons are charging their patients for the surgeries you fund?

A: Because we work in public (government) hospitals - and because healthcare in Iraq is provided almost entirely free of charge - it is widely known that any cardiologist, surgeon, or administrator seeking compensation for services is acting outside of Iraqi law. [Back to Top]

 Q: Do you follow up with the surgeons you've trained to assess whether they are correctly applying their training?

A: We see them quarterly in their local environment and perform real-time audits of their skills, recollection of past training, application of new techniques, etc. Additionally, our international surgeon remains on call at any time via phone, Skype, or email for consultation. [Back to Top]

 Q: What information is available on the activities - and competence - of the surgeons you've trained?

A: Because our Remedy Mission training program only began in late 2010 - and pediatric heart surgery at our sites across Iraq is the same age - there is still relatively little independent practice to report, and therefore little data on the activities and competence of our surgeons and their teams. But as they begin performing more surgeries independently, we are trying to align each site/surgical team with the International Quality Improvement Collaborative for Congenital Heart Surgery in Developing Countries (a data collection and tracking initiative of Children's Hospital Boston and Harvard University). [Back to Top]

 Q: Where do surgeons work after completing training? Do they serve poor patients?

A: As of Q2 2011 there was only one private hospital in Iraq (to our knowledge) providing pediatric heart surgery (and those surgeries were on the lower end of the complexity scale). Our work does not necessarily mean to exclude private hospitals as they continue to come online and become viable options, but at present the government system has a better equipped foundation for training local surgical teams. As we look to fully graduate our local surgical teams in the next 5-10 years, we imagine that most of them will stay in the public sector for all of the stability, pensions, and benefits of loyalty provided to those who stick with it. But, undoubtedly, some will seek positions at private hospitals (assuming private hospitals are willing to invest in the requisite capital purchases necessary to establish a credible program). In the public sector, rich and poor are served alike. In the private sector, poorer patients would be at an obvious disadvantage. [Back to Top]

 Q: How much do you spend each year on "program" expenses and how much on "overhead?"

A: As a rule, we do not adhere to the model that claims that "overhead" is somehow bad and "program" is somehow good. There are very bad program expenses. There are overhead expenses that are excellent investments. We agree with Paul Brest, President of the Hewlett Foundation, when he said, "Achieving a low overhead ratio drives many charities to behaviors that make them less effective and means more, not less, wasted dollars." Therefore, we spend as much on overhead as we need to accomplish our mission. The mission itself is our North Star - not arbitrary (even harmful) standards about overhead-vs-program expenditures. For the record, however, you can find a current pie chart of our expenditures here (and if you're into that sort of thing, you'll probably be impressed!). [Back to Top]

Jeremy Courtney Founder, Executive Director Twitter: @Jeremy_Courtney

“I'd love to hear any critique or questions you might have!”

DROP A NOTE OR DONATION BY MAIL: Preemptive Love Coalition 1300 Darbyton Dr. Hewitt, TX 76643 GIVE BY PHONE: To make a gift over the phone, using your credit card (Visa, MasterCard, American Express, or Discover), please call +1 (806) 853-9131 during normal business hours. IRAQ OFFICE: +964 770-355-6298 (local)

Sweet Shahid Returns!

November 17, 2012 by Cayla · Leave a Comment 

Today the cardiologist screened some of the children who had surgery during the last mission. It was good to see them again, up and about.

One in particular caught my eye. A little girl who I remember from the echo room last mission. Her lips were so blue blue and her face was sad.

This was not the girl I met today.

She was laughing and smiling, playing with her sisters and posing for the camera. I love the day when the children from last mission come back for their post-op screening. It’s so fun to see how they’re improving—the kind of life they can have now that their heart is working.

We hope to see so many more transformed, happy children in Najaf and across Iraq. Thanks for doing this alongside us!

Our Partners:

Cayla Willingham is Remedy Mission Coordinator and Family Advocate. When she isn't spending time with families, she enjoys cooking, hosting friends, haggling in local bazaars and souks, and learning local languages.

My First Remedy—A First-Timer’s Look Into The Echo Lab

October 5, 2012 by Cayla · Leave a Comment 

I’ve spent the last three days of this mission in the echo lab, helping the cardiologist as she examines the hearts of children who make up what we like to call The Backlog.

It has been an interesting three days.

Each time we walk through the halls back to the echo room, we pass by dozens of anxious mothers, sitting, waiting, gripping their babies and hoping we’ll be the ones to bring them good news.

Family after family comes into the little room, puts their bundle onto the table and watches as the doctor probes their child’s chest. The older ones lay there patiently, but some of the younger ones aren’t so cooperative. Their parents try desperately to calm them down until the doctor finally has to give up and send them out for sedation.

It’s difficult to tell how effective the sedative will be. Sometimes the kids come back looking like a sack of potatoes while others come back just tired and angry. It doesn’t seem like the people administering the drugs have quite perfected the dosages.

One little boy laid in his dad’s arms while the doctor tried to reach his chest, crying and crying, until he puked. That was gross. Another family drove hours to be there for the screening and then the child was so out of control he was sent away three times before the doctor finally managed to get a good look at his heart.

All-in-all, it’s been hectic. But it’s also been good for me to see first-hand how massive the need here is, and how much these parents love their children. The last little boy we saw today had been born with serious defects effecting his entire body, including his heart. The doctor explained to the translator why a surgery would be near impossible and the mother must have read it on her face because she started crying even before she understood what was being said.

So far, we’ve screened 45 children, and, considering we’re not even halfway through the mission yet, I’m sure we’ll see well beyond 100. Thanks for helping us screen and save these children, and come back tomorrow for an update on one you recently helped, little Zahraa!

Our Partners:

Cayla Willingham is Remedy Mission Coordinator and Family Advocate. When she isn't spending time with families, she enjoys cooking, hosting friends, haggling in local bazaars and souks, and learning local languages.

A First-Timer’s Excitement: Remedy Mission XII Has Begun!

October 3, 2012 by Cayla · Leave a Comment 

We’re in Najaf, Iraq for our 12th lifesaving Remedy Mission, and today was the first day in the hospital. They performed 2 operations and screened 16 kids—on the first day! It’s amazing to see the ICHF team in action.

I’m particularly exited about this mission because, despite working with PLC for over a year, this is my first time to personally be a part of a mission. Like you, I’ve seen lots of pictures and heard lots of stories, but I can’t wait to experience it for myself!

So, over the next two weeks, I’d like to give you my first impressions of our work. I’ll be working with the cardiologist as she screens dozens of children, I’ll visit with families in the ward, and I may even get to sit in on a few operations! But none of this would be possible without you guys, and we’re honored to represent you and the rest of The Coalition by being here and helping these children.

So stay tuned, we’ve got our first ‘Update From the O.R.’ video coming tomorrow.

Our Partners:

Cayla Willingham is Remedy Mission Coordinator and Family Advocate. When she isn't spending time with families, she enjoys cooking, hosting friends, haggling in local bazaars and souks, and learning local languages.

Neighbors

May 18, 2011 by Cayla · Comments Off 

I love the spring, and I’m not the only one. Doors are open, people are out, the neighborhood comes alive. Our neighbors aren’t afraid to let life spill onto the street.

This morning when I left for the office there were boys rollerblading around me and a cluster of women reaching into the grape trees for leaves to make a traditional riced-stuffed dish.

As a newcomer to the neighborhood, I get excited about the opportunities that come with the cool breezes and the sunshine, and I’m reminded of how fortunate we are to live and work among the people here.

Cayla Willingham is Remedy Mission Coordinator and Family Advocate. When she isn't spending time with families, she enjoys cooking, hosting friends, haggling in local bazaars and souks, and learning local languages.

Leah’s Story Exemplefies The Need For Followthrough

April 22, 2011 by Cayla · 1 Comment 

As a new member of the PLC team, there’s always something to learn. One of the first things on the to-learn list was how to answer the question, “What’s your job?” in Kurdish. I usually use the term ‘social worker’ to describe what I do, so I asked my language tutor how to say that in Kurdish and she explained that there isn’t a word for it because there isn’t really a job like that in our city.

Because women tend to stay home, the need for a family advocate/social worker to come to them is huge. Unfortunately the need isn’t widely seen, and in many homes even basic healthcare knowledge is lacking.

Last week I went with our family services director, Jessica Courtney, to visit Leah, one of the children who received surgery in March. Jessica was there in the ICU to help Leah’s mom understand the importance of a feeding tube and, for the second time, I got to see her comfort and inform this worried mother about medicines, dosages and how to help her child recover.

Hospital trips and caring for a sick child can be fearful times, and mothers need someone they can rely on. We hope to be that for them.

Leah’s mother wouldn’t have understood the urgency of a feeding tube or her baby’s need for consistent medication if Jessica hadn’t been there.

This is why we Followthrough.

Cayla Willingham is Remedy Mission Coordinator and Family Advocate. When she isn't spending time with families, she enjoys cooking, hosting friends, haggling in local bazaars and souks, and learning local languages.

Fighting for Families

December 8, 2009 by Cayla · Comments Off 

When a child is chosen for surgery, their family is adopted by a member of the PLC team. This person makes it their goal to do whatever is necessary to defend the family in this time of vulnerability. They are the family advocate.

The care offered to the family goes far beyond a healthy heart. When I visited the team in Iraq a month ago, I was able to see this care first hand on various home visits I made with PLC’s family advocates.

Here are some examples of what I saw:

• Honya went to Istanbul for surgery in November. Her advocate sat with her parents to explain what the process would be like and what to expect in the hospital.




• Heran needs a follow-up surgery but must gain weight before that’s possible. Her advocate has been visiting weekly, checking her weight and encouraging her closer to this goal.




• Taban has completely recovered from her surgery but lacks motivation in school. Her advocate met with the school board, persuaded them to let her enroll, and continues to support her education.




• Zana has also been doing well, but his mother was keeping him from school for fear he would turn up sick again. After some reassurance, she allowed him to begin his studies.




• Shwana has fully recovered and is doing great, but others in his family are still in need. His family advocate is in the process of acquiring a wheelchair for his disabled cousin and was able to give helpful exercises to his grandma who recently had a stroke.

  
  

PLC does so much more than just heart surgeries; they truly care for the Iraqi people and work to show them that they matter. I was astounded to see how much is invested in the lives of the children and their families and how big of a difference it really makes.

HELP PLC IN THEIR ADVOCACY ON BEHALF OF IDREES BY GIVING TO HIS SURGERY IN HONOR OF A FRIEND BELOW:

	Idrees is slated for surgery in January 2010. PLC will be collecting money for his life-saving surgery throughout the Thanksgiving and Christmas season. What a chance to make a profound difference in the life of a child and his family!
	GIVING IN HONOR OF ANOTHER In honor of a friend or family member, donate the amount of your choice to fund a January surgery for Idrees by entering it in the field below. PLC will send you a Christmas card about Idrees along with a Preemptive Love Coalition “Hope for the Holidays” magnet as a physical expression of your gift on behalf of another. Donation:

Cayla Willingham is Remedy Mission Coordinator and Family Advocate. When she isn't spending time with families, she enjoys cooking, hosting friends, haggling in local bazaars and souks, and learning local languages.

Filed under: Family Participation, Heart Surgery, Heran, Honya Mahdi, School, Shwan, Taban Ali, Zana Tofiq