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Sara’s Valve Surgery is a Complete Success!

March 5, 2010 by Jeremy · Leave a Comment 

Dr. Sertaç Bey and Ahmet Bey in Surgery

Drs. Sertaç & Ahmet Corrected a Life-threatening Problem w/ Sara’s Valve in a 4 hr. Surgery

Sara’s surgery was a complete success! And for a child living with a congenital heart disease for 14 years, that is no small celebration! Not every condition or child is the same, but generally speaking, congenital heart defects are best addressed at a young age. Years of damage and overcompensation often render a child inoperable or create attendant problems such as pulmonary hypertension.

It’s a joy to see Sara come through surgery with the exact corrective procedure that the doctors had planned on performing prior to surgery.

Yesterday it was virtually out of the question for Sara to marry and have children - her heart condition simply wouldn’t allow that sort of additional stress to her body.

Today, doctors estimate that they have extended her life by up to twenty years before she’s likely to need any additional procedures. At that point, the field of cardiac surgery will be more advanced, and it’s hard to even speculate what options may be available to her at that time. In any case, her heart is healed and her body is healing.

And if she wants to, she can even dream about having kids someday! It’s amazing what you’ve done!

To make a small donation to the next child in Iraq waiting for a surgery similar to Sara’s, please enter the amount of your choice below and press “Donate.”



Follow Sara on Twitter: @SaraMuaeed. Subscribe to Sara’s updates via RSS HERE. Follow Sara’s thread of longer stories (with pictures & video) on the PLC blog HERE.

Jeremy Courtney lives and loves in Iraq as a co-founder and Executive Director of the Preemptive Love Coalition. He's also the father of two spectacular children, and married to the lovely Jessica Courtney. When not absorbed in PLC work he can be found writing songs and singing about hope and future. Follow Jeremy on Twitter: @JCourt.

Meet Dua (Twitter: @Dua_Arif)

February 24, 2010 by Jeremy · Leave a Comment 

Meet Dua

We met Dua and her family through a partnering organization on the northern Iraq-Turkey border near the area where Dua lives. As a result, we’re just now getting to know her (whereas we’ve had relationship with some of these other families for months).

Dua was diagnosed in Iraq with “tricuspid atresia” – a defect that only accounts for 1-3% of all congenital heart defects. In short, this defect means there is an absence of the tricuspid valve. From Wikipedia (because a lot of other sites prohibit quoting their information!):

Therefore, there is an absence of right atrioventricular connection. This leads to a hypoplastic (undersized) or absent right ventricle. This defect is contracted during prenatal development, when the heart does not finish developing. It causes the heart to be unable to properly oxygenate the rest of the blood in the body. Because of this, the body does not have enough oxygen to live, and steps must be taken to keep the child alive.

And for bonus points, you can click here to read more on the Fontan procedure for which Dua is a candidate (though her operability is still undetermined).

Follow Dua Arif on Twitter: @Dua_Arif. Subscribe to Dua’s updates via RSS HERE. Follow Dua’s thread of longer stories (with pictures & video) on the PLC blog HERE.

*In accordance with PLC’s desire to lend a hand-up by avoiding strict hand-outs (when possible), Dua’s family worked with the regional government and with personal and government funds contributed $6,000 towards PLC’s highly-discounted surgery prices.

Jeremy Courtney lives and loves in Iraq as a co-founder and Executive Director of the Preemptive Love Coalition. He's also the father of two spectacular children, and married to the lovely Jessica Courtney. When not absorbed in PLC work he can be found writing songs and singing about hope and future. Follow Jeremy on Twitter: @JCourt.

Soma Salah Has Passed Away Due to a Blood Clot in Lungs (b. July 24, 2009 – d. January 10, 2010)

January 11, 2010 by Jeremy · 1 Comment 

Soma and mom waiting for surgery

It’s with a heavy heart that I write today to say that Baby Soma passed away at 11:45 p.m., Sunday, January 10th, 2010. I had just gotten off the phone with the church in Texas that funded her surgery and given them the update about her serious condition, while thanking them for taking a risk on her surgery. I didn’t know it at the time, but as they finished their lunch in Texas, Soma’s life was on the line in Istanbul.

It was a blood clot in her lungs – something for which the ECMO machine couldn’t compensate. The surgeons left the comfort of their homes and families in the middle of the night to respond but there was nothing to be done.

Last week I said that the Preemptive Love Coalition was not a heart surgery organization, as though chalking up another heart surgery was of some importance. I said we were a HOPE BANK where parents come for hope transfusions – a global family alongside whom Iraqi families could stand in the face of hopelessness, and finally see light at the end of the dark night. And I said that it was for long-term impact that we had decided to take the risk on Soma’s surgery.

Soma waiting for surgery w/ Jeremy

So how should we understand our decision today? Did we make the right choice? Did we hasten her death? Was it worth it? Was it a failure? Are we complicit?

Everyone will judge us by their own criterion. Indeed, our own answers and emotions have run the gammut this week. This was a huge surprise for us. We had braced ourselves for long-term loss. We were entirely unprepared for loss in the short-term (even though the doctors had only offered a sobering 65% chance of her surviving ICU).

From an organizational stand point, I owe you an answer as to whether or not we count this as a success or failure so you know what to expect from us in the future.

1. This is a failure. We don’t exist for heart surgeries. We exist to impact the children who are most “impactable” for the long-term. In fact, we turn many children away because their long-term well-being is best served by non-surgical solutions. All other things being equal (and they never are), we would use our limited resources to offer surgery to a child who is most likely to be alive with a healthy heart in sixty years before we help a child who will be hanging on by a thread with a dying heart at twenty. In that sense, we invested our money in a bit of a gamble with Soma because we knew that there were other kids back in Iraq who were more highly “impactable.” It would be easy to argue that we didn’t make it past good intentions this time and that this was an “impact fail.” We welcome that critique. And if that is how you’d like your money invested, we are here to put your money to work. At the same time…

Soma Waiting for Tests Before Heart Surgery

2. This is a success. The Preemptive Love Coalition consistently offers hope, help, and life-saving heart surgeries to children that have been rejected by one or more of the other options available to them. Whether it is a question of resource allocation, ethical priorities, or surgical skill, many of the lives we have successfully saved have been turned down by the government, local, or international groups – including Kadeeja, Heran, and Ahmed . We were – as far as anyone knew – their last chance; their last hope. Soma was one of these.

We spoke seriously with Soma’s parents about the risks. In the end, it was not really the Preemptive Love Coalition who decided to do the surgery. What we did was give them the green light to use our funds and choose for themselves. They chose to risk it and in that limited sense, we gave the family what they asked for – a chance at life. And that chance – that hope – is precisely what they had not found in any other government, hospital, or organization. We told them We love you. You matter to us and to God.. From the hope perspective; from the love perspective, this was not a failure. We chose to love; and love deeply.

Soma is Beautiful Baby from Iraq

3. Still, this is a wake up call. We have asked you a number of times what kind of organization you would have us be. Your overwhelming answer is that you’d like us to be people of the last chance. Some families in Iraq are unnervingly content to sit by and deny their children are dying. We’ve seen it a number of times. It defies all reason. But many more are ready to risk it all for a chance to see their 7 month old learn to crawl, go to school, and marry someday. For those families, you’ve declared your intention to stand by their side. And we have used your financial gifts to fulfill your wishes.

Soma stands as a monument of hope for other Last Chance Children. We don’t have to burry her story with her body for fear that it will reflect negatively on our work; for fear that fewer Iraqi children will be helped because of the “bad press.” To us, this isn’t bad press. This is love in motion.

Jon Foreman sings, “If it doesn’t break your heart it isn’t love.”

This is a wake up call because there are going to be more little babies like Soma that break our hearts. Brace yourselves. If you’re in this for the long haul with us, we can promise you:

  • 1. We will give it everything we have and we will give families HOPE and a shot at life.
  • 2. We will see more death.
  • 3. We will love until we bleed out and have nothing left.

With you,

Jeremy Courtney
Executive Director
jeremy [at] preemptivelove.org

Jeremy Courtney lives and loves in Iraq as a co-founder and Executive Director of the Preemptive Love Coalition. He's also the father of two spectacular children, and married to the lovely Jessica Courtney. When not absorbed in PLC work he can be found writing songs and singing about hope and future. Follow Jeremy on Twitter: @JCourt.

Soma’s Surgery a Success, Lung Problems Keep Her on Machine in ICU, Chest Still Opened

January 9, 2010 by Jeremy · 21 Comments 

Soma in ICU

Soma in ICU

We do not want to be unnecessarily graphic; but do want to convey the gravity of Soma’s situation right now.

Soma in ICU

Soma's post-surgery consultation

Her valve was almost completely “gone” once doctors got to it on Friday, having already cooled her body temperature to 20 degree C. The valve repair went well and we met with Dr. Sertaç Çiçek in the 6th hour of the surgery as his team began warming her body back up to 36 degrees C.

One and a half hours later they came back out and told us that her lungs had some problems after taking her off the heart-and-lung machine and they decided to put her on “extracorporeal membrane oxygenation” (ECMO) - a machine that effectively assists or replaces the lungs. So her heart is pumping, but ECMO is oxygenating her blood right now.

In the consult he estimated that she had a 65-75% of surviving ICU, saying Soma is in “satisfactory, but critical condition.”

Today the ICU nurses attending to Soma said she had a great night in ICU and was “doing a little better than before.” She will almost certainly be on ECMO with few changes for the next few days. In the meantime, please pray for her lungs to heal, her heart to strengthen, and her mother to remain at peace.


Isn’t it amazing to watch life-saving in progress? We are able to do this because thousands of people like you have given $10, $25, and $50 – or whatever they could – to impact the future of kids in Iraq.
Have you helped out yet? Would you give what you can today below?


Follow baby Soma on Twitter: @SomaSalah. Subscribe to Soma’s updates via RSS HERE. Follow Soma’s thread of longer stories (with pictures & video) on the PLC blog HERE.

Jeremy Courtney lives and loves in Iraq as a co-founder and Executive Director of the Preemptive Love Coalition. He's also the father of two spectacular children, and married to the lovely Jessica Courtney. When not absorbed in PLC work he can be found writing songs and singing about hope and future. Follow Jeremy on Twitter: @JCourt.

“Take My Eyes Just Save My Child” Cries Soma’s Mom On the Way to Surgery

January 8, 2010 by Jeremy · 6 Comments 

Soma going to surgery-5

The extended deliberation and explanation about the risks of Soma’s particular surgery was not easy on Soma’s mom – or her dad by telephone back in Iraq. So when it came time to wheel her down to the operating room, emotions were running pretty high and fears were even more piqued than some of the other mothers.

Soma is in surgery right now. More to come in a few hours…


We can do surgeries like this because hundreds of people every year give generously to cover the material costs of surgery to impact the future of kids in Iraq.

Surgeons in Turkey are playing their part. Would you give what you can today to make a difference for tomorrow?

Jeremy Courtney lives and loves in Iraq as a co-founder and Executive Director of the Preemptive Love Coalition. He's also the father of two spectacular children, and married to the lovely Jessica Courtney. When not absorbed in PLC work he can be found writing songs and singing about hope and future. Follow Jeremy on Twitter: @JCourt.

Soma Selected for Surgery After Days of Considering Surgery’s Potential Impact

January 8, 2010 by Jeremy · 1 Comment 

Soma and mom waiting for surgery
Soma is a 7 month old little girl from a small village in Iraq.

Soma waiting for surgery w/ Jeremy
Preemptive Love Coalition’s Jeremy Courtney plays with Soma as mom awaits surgery decision.

Soma waiting for surgery w/Jeremy
Soma’s dad was tortured by Saddam Hussein a few years before 2003. It’s an honor to care for his child in Istanbul, Turkey while he remains with his other children in Iraq.

Soma going to surgery
Difficult discussion about the post-operative course for Soma after announcing her selection for surgery.

The Preemptive Love Coalition is not a heart surgery organization. Heart surgeries come and go. You can even get a heart surgery and die because of it. Heart surgeries are not the point.

The Preemptive Love Coalition is a children’s organization. The point is impacting children’s lives. We make hard decisions every day about how we can most impact children. Sometimes that means we end up passing on children whose likelihood to benefit from surgery is actually quite small. For days now, we’ve been wondering if Soma might end up being one of those children.

But the Preemptive Love Coalition is also a hope bank – a place where Iraqi families come for a chance at a better life for their kids; a place they come for a hope transfusion. And being a people of hope has compelled us to accept Soma to surgery.

Soma will be dead in two years without surgery. If there is any error to be made with her, we want to err on the side of giving hope and a future. And this isn’t just a field decision – time and time again we’ve heard from you that this is the organization you want us to be and that this is, overwhelmingly, how you want your money spent.

Soma goes to surgery today. Stay tuned…


The most critical factor in our decision to help Soma was our own personal presence in Iraq and our team’s commitment to ongoing followthrough with Soma’s family in their village three hours away. If you love what we do, please consider contributing to our travel and Followthrough fees to see Soma in her village.




Follow baby Soma on Twitter: @SomaSalah. Subscribe to Soma’s updates via RSS HERE. Follow Soma’s thread of longer stories (with pictures & video) on the PLC blog HERE.

Jeremy Courtney lives and loves in Iraq as a co-founder and Executive Director of the Preemptive Love Coalition. He's also the father of two spectacular children, and married to the lovely Jessica Courtney. When not absorbed in PLC work he can be found writing songs and singing about hope and future. Follow Jeremy on Twitter: @JCourt.

Meet Soma Salah (Twitter: @SomaSalah)

January 6, 2010 by Jeremy · 19 Comments 




It’s hard to know what to say about Soma – there is so much to tell. She’s from a village in Iraq that was utterly destroyed by Saddam Hussein. Her father was tortured by Saddam’s Ba’athist regime by electric shock and now suffers neurological difficulties as a result. And to complicate it all, after losing a child on the second day of birth, Soma’s parents learned when Soma was just a few days old that she was born with a congenital heart disease.

We’re taking her to Istanbul, Turkey for what we hope will be a life-saving heart surgery.


Special thanks to the college students of FWCM.org for their phenomenal $14,800+ two week fundraising campaign for Soma and one other child. Your passion and effectiveness in fundraising is a testament to the faith, values and lifestyle you profess. We’re looking for 12 other houses of worship, schools, and clubs to partner with us in 2010. Click here for more on our Fifty Family Focus.

Soma Salah Hope Thumbnail

PRINT & PASS ALONG SOMA’S HOPE CARD HERE.


Follow baby Soma on Twitter: @SomaSalah. Subscribe to Soma’s updates via RSS HERE. Follow Soma’s thread of longer stories (with pictures & video) on the PLC blog HERE.

—————–

ADDITIONAL LOCAL FUNDING BY:

family funding*
FAMILY FUNDING

Kurdistan Save the Children
KURDISTAN SAVE THE CHILDREN

*In accordance with PLC’s desire to lend a hand-up by avoiding strict hand-outs (when possible), Soma’s family – though living in the poorest area we’ve ever seen in Iraq – was able to work with local government and family to provide $3,500 towards PLC’s highly-discounted surgery prices.

Jeremy Courtney lives and loves in Iraq as a co-founder and Executive Director of the Preemptive Love Coalition. He's also the father of two spectacular children, and married to the lovely Jessica Courtney. When not absorbed in PLC work he can be found writing songs and singing about hope and future. Follow Jeremy on Twitter: @JCourt.

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