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Nivar Rests in ICU Extubated and Breathing on Her Own

July 23, 2010 by Jeremy · Leave a Comment 

julygroup1

Friday was another great day of progress for Nivar. She is still in ICU due to a small chest infection, but she is breathing on her own and eating. As soon as the infection is cleared up, she will be transferred to her room upstairs. Stay tuned for more from Istanbul on Nivar’s progress…

Yahyah This little boy, Yahya, still needs a few thousand dollars to cover the costs of surgery and travel from Iraq to Istanbul so he can experience the same life-change you’ve given Nivar. To take Yahya out of line and get him to Istanbul for surgery, please enter the amount of your choice below and click “Donate Now!”.



Follow Nivar on Twitter: @NivarMohammed. Subscribe to Nivar’s updates via RSS HERE. Follow Nivar’s thread of longer stories (with pictures & video) on the PLC blog HERE.

Jeremy Courtney lives and loves in Iraq as a co-founder and Executive Director of the Preemptive Love Coalition. He's also the father of two spectacular children, and married to the lovely Jessica Courtney. When not absorbed in PLC work he can be found writing songs and singing about hope and future. Follow Jeremy on Twitter: @Jeremy_Courtney.

Photo of the (Yester)Day: Nivar Recovers in the Cardiac Intensive Care Unit

July 22, 2010 by Jeremy · Leave a Comment 

out-of-surgery800

While the risk of death and attendant complication associated with Nivar’s open heart surgery was estimated to be just 5%, there is still something that inside of us that say the human body should not be opened up and closed again; something that says that is excessively dangerous and causes us to hold our breath in anticipation of good news.

And that’s why this photo is so poignant. There is nothing as satisfying as hearing that your little one is out of surgery and that all went well and there is nothing like seeing her alive and well – all put back together again. Well, nothing except hearing that she’s being taken off of all the machinery and living entirely on her own… but that story is yet to come!

Yahyah This little boy, Yahya, still needs a few thousand dollars to cover the costs of surgery and travel from Iraq to Istanbul so he can experience the same life-change you’ve given Nivar. To take Yahya out of line and get him to Istanbul for surgery, please enter the amount of your choice below and click “Donate Now!”.



Follow Nivar on Twitter: @NivarMohammed. Subscribe to Nivar’s updates via RSS HERE. Follow Nivar’s thread of longer stories (with pictures & video) on the PLC blog HERE.

Jeremy Courtney lives and loves in Iraq as a co-founder and Executive Director of the Preemptive Love Coalition. He's also the father of two spectacular children, and married to the lovely Jessica Courtney. When not absorbed in PLC work he can be found writing songs and singing about hope and future. Follow Jeremy on Twitter: @Jeremy_Courtney.

Nivar’s Surgery Results in Total Correction!

July 21, 2010 by Jeremy · 1 Comment 

Nivar's Surgery

Clamps. Wow.

After nearly 5 hours in surgery we heard the news that Nivar had received a total correction for her heart defect and was resting under heavy sedation in ICU. Here is how one of our volunteers and donors on site described the scene as her father rushed to hear the news:

Have you ever observed something that made you feel just a little more alive than you did the second before? The senses sharpen, everything else around you stops, and it seems as if the state of your very existence could hinge upon your understanding of that precise moment. Life all of a sudden becomes more valuable and hope of something unintelligible, unexplainable and far off fills your being from deep within. THIS is how I felt when I dodged a father running to see his daughter’s doctor following the completion of her open heart surgery…

In the post-op consult we learned that Nivar has been misdiagnosed and that her complication was more severe than originally thought. Once her chest was opened up Nivar was found to have a defect known as “Double Outlet Right Ventricle” in which both great arteries arise wholly or in large part from the right ventricle. Dr. Çiçek corrected her great arteries and patched a massive hole between the lower chambers of her heart and sent her on her way.

We were able to place three of our summer interns in surgery yesterday – two pre-med students and a photographer – which was a very rewarding experience for all involved. Above are two snapshots of what they experienced during surgery….

Nivar is resting in ICU right now. We deeply appreciate your generosity in seeking to save Nivar’s life and your attentiveness this week as we’ve posted updates on her progress each step of the way. Has she captured your heart? You should tell someone about it!

Please use the “Share This”, “Twitter box,” and “Facebook Comments” box below to spread the word about our work right now. A tweet, a Facebook “like,” or an email to a friend can go a long way toward helping us bring more kids like Yahya to surgery in a few weeks.

Follow Nivar on Twitter: @NivarMohammed. Subscribe to Nivar’s updates via RSS HERE. Follow Nivar’s thread of longer stories (with pictures & video) on the PLC blog HERE.

Jeremy Courtney lives and loves in Iraq as a co-founder and Executive Director of the Preemptive Love Coalition. He's also the father of two spectacular children, and married to the lovely Jessica Courtney. When not absorbed in PLC work he can be found writing songs and singing about hope and future. Follow Jeremy on Twitter: @Jeremy_Courtney.

Nivar Goes in to Surgery After Endless Games of Patty-Cake

July 20, 2010 by Jeremy · Leave a Comment 

A hospital is a lonely place if you don’t have someone you love and trust to share it with. Nivar is here in Istanbul – away from her home and family and brand new baby sister in Iraq – with her dad. Dad’s are great for little girls… but let’s be honest… little girls need other girls!

It has been a tremendous ending to our Preemptive Love Summer Internship this week watching Lydia Bullock and all of our other interns give themselves to these kids and their parents as much as they can.

In the video above Lydia plays patty-cake again and again and again with little Nivar – which effectively staves off the worry and fear that could have easily set in as Nivar waited for surgery this morning. Her dad was worried and scared, but a little humility and willingness to meet a child on her own level meant that Nivar had nothing to fear.

Nivar went into surgery at 10 a.m. this morning… stay tuned for more updates on her progress….

Follow Nivar on Twitter: @NivarMohammed. Subscribe to Nivar’s updates via RSS HERE. Follow Nivar’s thread of longer stories (with pictures & video) on the PLC blog HERE.

Jeremy Courtney lives and loves in Iraq as a co-founder and Executive Director of the Preemptive Love Coalition. He's also the father of two spectacular children, and married to the lovely Jessica Courtney. When not absorbed in PLC work he can be found writing songs and singing about hope and future. Follow Jeremy on Twitter: @Jeremy_Courtney.

Thoughts on Nivar, My Own Little Girl, and Injustice

July 20, 2010 by Jeremy · Leave a Comment 

You know I have a daughter… she’s not quite Nivar’s age. But I have deeply enjoyed the years I’ve had with her. She has her own personality. We have our own little jokes. We have secret phrases that no one else understands. And she loves candy… especially suckers.

So while my daughter is safe at home with a fully functioning heart, I’m doubly burdened by the weight Nivar and her family have carried all these years. Why wasn’t she treated earlier? Why are there so few healthcare options in an oil-rich country like Iraq? Why was she born this way at all?

Did GOD do this? Did Saddam do this? Could we have done this?

These are things that I’m beginning to talk about with my daughter when we pray for little girls like Nivar.

One of the “heart surgery kids” my daughter became most attached to was a baby named Daryan we tried to save a year ago this week. He died. My daughter is remarkably unfazed by death. She still talks about Daryan and prays for him weekly.

Sometimes I wonder if I should I be more like her?

While Nivar’s dad steps outside to get a break and smoke a cigarette, I’m sitting here with Nivar alone in Istanbul thinking how much she’s like my little girl. Thinking about sending my daughter through those harrowing doors into heart surgery brings tears so easily. Every time I see these kids cry in the face of the unknown; every time I see them play through the discomfort; and every time I see them enjoy a sucker in the sunshine I remember that these dark shadows in which they live simply prove the existence of a blazing light; a better reality. Because for all the questions left unanswered in the face of injustice, we can agree that shadows prove the light.

Follow Nivar on Twitter: @NivarMohammed. Subscribe to Nivar’s updates via RSS HERE. Follow Nivar’s thread of longer stories (with pictures & video) on the PLC blog HERE.

Music courtesy The Autumn Film (http://theautumnfilm.com/)

Jeremy Courtney lives and loves in Iraq as a co-founder and Executive Director of the Preemptive Love Coalition. He's also the father of two spectacular children, and married to the lovely Jessica Courtney. When not absorbed in PLC work he can be found writing songs and singing about hope and future. Follow Jeremy on Twitter: @Jeremy_Courtney.

VIDEO: Four Iraqi Children Arrive in Istanbul for Lifesaving Heart Surgery

July 20, 2010 by Jeremy · Leave a Comment 

On July 18th four Iraqi kids arriving in Istanbul, Turkey in need of lifesaving heart surgery. They have entered a country about which they have mostly heard negative stories.

This week will change their perspectives and change their lives forever…

Follow Chro on Twitter: @ChroArkan. Subscribe to Chro’s updates via RSS HERE. Follow Chro’s thread of longer stories (with pictures & video) on the PLC blog HERE.

Follow Leah on Twitter: @Leahibrahim. Subscribe to Leah’s updates via RSS HERE. Follow Leah’s thread of longer stories (with pictures & video) on the PLC blog HERE.

Follow Nivar on Twitter: @NivarMohammed. Subscribe to Nivar’s updates via RSS HERE. Follow Nivar’s thread of longer stories (with pictures & video) on the PLC blog HERE.

Follow Jeen on Twitter: @JeenMustafa. Subscribe to Jeen’s updates via RSS HERE.

Jeremy Courtney lives and loves in Iraq as a co-founder and Executive Director of the Preemptive Love Coalition. He's also the father of two spectacular children, and married to the lovely Jessica Courtney. When not absorbed in PLC work he can be found writing songs and singing about hope and future. Follow Jeremy on Twitter: @Jeremy_Courtney.

Chro & Leah Play While Waiting for Surgery; Mothers Share Fear & Worry

July 19, 2010 by Jeremy · Leave a Comment 

Chro Gets Her Toes Painted by Preemptive Love Donor and Volunteer

As many mothers of sick children know, outward behavior does not always accurately convey the gravity of an internal illness. Such is the case with Chro and Leah, who are settled into their room and already beginning to attract strangers with their smiling faces. Having been born with defective hearts and yet to discover what life could be like with a healthy body, these young girls have no choice but to enjoy life as they know it. While Leah prefers being held or playing with her rattle, Chro’s favorite activity to pass the time is getting her toenails painted…again and again and again. But when the first words out of her mother’s mouth in the morning are, “when is my child’s surgery?” the immediacy of these beautiful little girls’ situation is unavoidable.

We can’t help but smile at the contrasts present in the hospital room these two mothers and their children share. One woman is a mother of eight, while the other is perhaps twenty years younger, fighting for the life of her first child and five months pregnant with her second.

What the two mothers share in common, however, is concern.

Preemptive Love Family Service Director, Jessica Courtney, Plays with Leah Before Surgery

As of two days ago, these women had never traveled without their husbands, flown on an airplane or left their country. Yet they have now experienced an overnight flight to a country they have been taught to fear and a long bus ride through one of the largest cities in the world, all on their own. Surrounded by foreign languages and customs, these mothers now await their child’s first opportunity at a full life, sharing a hospital room with perhaps the only other person in the world that just might understand how they feel.

Surgeries here at Anadolu Medical Center begin tomorrow, and we hope these two mothers will soon have the joy of receiving the news that they may return to their families with healthy children and renewed hope. Then there will be four smiling faces when they leave their hospital room, instead of only two.

Follow Chro on Twitter: @ChroArkan. Subscribe to Chro’s updates via RSS HERE. Follow Chro’s thread of longer stories (with pictures & video) on the PLC blog HERE.

Follow Leah on Twitter: @Leahibrahim. Subscribe to Leah’s updates via RSS HERE. Follow Leah’s thread of longer stories (with pictures & video) on the PLC blog HERE.

Jeremy Courtney lives and loves in Iraq as a co-founder and Executive Director of the Preemptive Love Coalition. He's also the father of two spectacular children, and married to the lovely Jessica Courtney. When not absorbed in PLC work he can be found writing songs and singing about hope and future. Follow Jeremy on Twitter: @Jeremy_Courtney.

HOPE DENIED FOR PARWA

May 17, 2010 by Jessica · Leave a Comment 

parwa-hp-resized

This is not a very hopeful blog post, but one that is an everyday reality for many families in Iraq. Today I was sitting with Parwa’s family in their home when we learned she was deemed inoperable last week by an in-country diagnostic procedure. A wonderful team of American doctors came to our city last week and gave free check-ups and catheterizations (a procedure to assess how well the heart is pumping blood) to the children here. That part isn’t the infuriating part. What is infuriating is that this 11-year-old girl missed her chance at surgery; at a “normal” life – and that’s a chance she will never get again.

She should have had surgery 5-6 years ago. Even surgery one year ago may have saved her.

The hole in her heart (VSD) should not have been terminal. VSDs should not be giving death sentences to eleven-year-olds.

From the time I first met Parwa I have loved her. She is an amazing little girl, smiley and full of so much life. Unlike other children with heart problems, she isn’t blue, she goes to school, she plays with her brothers and sisters. If you saw her walking down the street you wouldn’t know that she is dying. And this is part of the problem. No one knew. No one thought to check.

This isn’t a country where most children go to the doctor for wellness checks at 2, 4, 6 months, and every year after that. This isn’t even a country where most children are born in a hospital (and those that are born in hospitals are discharged within hours in many cases without a chance to really assess much more than overt birth defects). Very few provincial doctors know how to check for these problems until it is too late.

In this case, even if they had discovered it at birth, there wouldn’t have been anything the doctors here could have done about it with the medical infrastructure such as it is.

And now it is too late for Parwa. But it is not too late for so many others. Days like today push me forward to walk into more homes and doctors offices and help these little ones who need help now.

Parwa isn’t the only child I saw today. I saw Bawar, a precious two-year-old going to surgery in July, playing outside with his older sister and brother. I also visited Yousif and his ten siblings in their small village house, complete with cows and chickens outside. Bawar and Yousif still have a chance. They are urgent and need surgery quickly. And the best news is that the only thing standing in the way is money. Their parents understand their problems, which led them to appeal to us for help to get to Turkey for their surgeries before it’s too late. Now we are just waiting on the funds.

Can you help?

We plan to send Bawar, Yahya, Leah, Nivar and possibly a few others to surgery on July 18, 2010. All donations will be used to cover their airfare, housing, food, and surgical expenses.


Jessica Courtney lives and loves in Iraq as a co-founder and Family Services Director of the Preemptive Love Coalition. She is also a mother of two children and is married to PLC's Executive Director, Jeremy Courtney. When not absorbed in caring for Iraqi children and sharing life with Iraqi families, she enjoys sewing and scrapbooking.

Successful Surgery for Deelan & Special Call for Lifesaving Funding

March 3, 2010 by Jeremy · Leave a Comment 

All Smiles After Another Successful Heart Surgery!

It was all smiles after another successful heart surgery here in Istanbul. Deelan’s surgery was a “total correction” – though he is still in ICU on a treatment of nitric oxide to bring down the pressure in his lungs.

In addition to being a by-product of cigarette smoke and rush hour traffic – not to mention a body building supplement – nitric oxide is used in pediatric intensive care. From the source of all online wisdom, Wikipedia:

The endothelium (inner lining) of blood vessels uses nitric oxide to signal the surrounding smooth muscle to relax, thus resulting in vasodilation and increasing blood flow.

and

Nitric oxide is considered an anti-anginal drug: it causes vasodilation, which can help with ischemic pain known as angina by decreasing the cardiac workload. By dilating the veins there is less blood returned to the heart per cycle. This decreases the amount of volume that the heart has to pump.

Nitric oxide should not be confused with “laughing gas” – or, more officially, nitrous oxide – N2O.

Nitric oxide is also very expensive. In fact, we’ve had to use it already on Muhammed and Baroof. In addition to normal surgery costs (which is essential to repair the CAUSE of pulmonary hypertension), NO can undo the previous effects of the now-repaired cause. To fix the cause and not seek to reverse the effects is to leave the net outcome the same.

We spent $2,000 per child on nitric oxide, for a total of $6,000. As much as the surgery itself, this has really proven to be the stuff that saves lives. So today I’m going to ask that you find a way to give generously to the Lifesaving Nitric Oxide Fund to pay down Muhammed, Baroof, and Deelan’s additional costs and to pave the way for future children who will need this treatment.



Molecule of the Year (1992), Nitric Oxide
To save lives through the very specific provision of nitric oxide, please contribute your desired amount below. One container of nitric oxide costs us approximately $2,000.

Follow Deelan on Twitter: @DeelanKameran. Subscribe to Deelan’s updates via RSS HERE. Follow Deelan’s thread of longer stories (with pictures & video) on the PLC blog HERE.

Jeremy Courtney lives and loves in Iraq as a co-founder and Executive Director of the Preemptive Love Coalition. He's also the father of two spectacular children, and married to the lovely Jessica Courtney. When not absorbed in PLC work he can be found writing songs and singing about hope and future. Follow Jeremy on Twitter: @Jeremy_Courtney.

Deelan is Taken in for Time-Sensitive Surgery

March 3, 2010 by Jeremy · Leave a Comment 

Deelan Waits in His Room for Surgery

Deelan Waits for Heart Surgery

Deelan and his mom were a little unnerved this morning as they waited – and were eventually taken in to the operating room – for Deelan’s surgery to repair the massive hole in his heart and thereby decrease the life-threatening pressures in his lungs.

Meanwhile, back in Iraq, Deelan’s family waits with a lot of anxiety over the next few hours. This thing they’ve been longing for; this thing they’ve been working for – this surgery – is now a great unknown. It still stands as a beacon of hope for them, but now that it’s upon them, the realities of the risks set in in a way that was previously unknown and unanticipated.

Deelan should be out of surgery in 4-5 hours. More to come…

Follow Deelan on Twitter: @DeelanKameran. Subscribe to Deelan’s updates via RSS HERE. Follow Deelan’s thread of longer stories (with pictures & video) on the PLC blog HERE.

Jeremy Courtney lives and loves in Iraq as a co-founder and Executive Director of the Preemptive Love Coalition. He's also the father of two spectacular children, and married to the lovely Jessica Courtney. When not absorbed in PLC work he can be found writing songs and singing about hope and future. Follow Jeremy on Twitter: @Jeremy_Courtney.

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