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Surgery Delayed for 30 Days

November 8, 2007 by · Comments Off 

Hedi was happily drinking a bottle when I arrived at the hospital today and found him and his sweet mother sitting in their room in the children’s ward. We visited for a bit, and I gave Hedi an inflatable fish toy which had been sent in a ”goody box” to us from someone in the US — thanks from Hedi!! He loved it.

Yesterday while at the hospital with the student group, we found out that Hedi would be treated with steroid medication commonly given for asthma associated with allergies. Today, he was not wheezing when I was there, and did not cough much either.

When I spoke to the doctor yesterday, we also talked about Hedi’s surgery. Dr. Katz informed me that Hedi would probably not have his surgery for about 30 days. This was a big disappointment for his mother, but we trust that the doctors know the best timing for each child’s surgery to be scheduled. There are several cases which are more urgent than Hedi, and the surgeon will be out of town to train doctors in another country next week. He cannot perform some of the most complicated surgeries and leave town, because he must monitor these patients closely, so the surgeries must be scheduled accordingly. Hedi’s is tenatively scheduled after some of the extreme cases, and this adds up to about one month. Had he not had the problem with the cough, maybe it could have been done more quickly.

Anonymous Donor Partially Funds Two Children for Buy Shoes. Save Lives.

November 6, 2007 by · Comments Off 

Hedi, 8 months old

Thanks to an anonymous gift directly to our partner organization on behalf of Buy Shoes. Save Lives., Hedi will be able to have the operation he needs to fix the hole between the ventricles of his heart. Your advocacy among your friends is apparently working! Keep it up!

Hussein, 3 years old

Hussein is from one of the few Arab (non-Kurdish) families who made it safely to the October screening. Doctors singled him out as urgent, as he periodically runs out of breath and cries. Our partners at Brothers Together took him across the Jordan River Monday with Hedi (above), and thanks to an anonymous gift on behalf of Buy Shoes. Save Lives., his sponsorship was completed at three minutes to midnight the same day!

Receiving Treatments for Wheezing

November 6, 2007 by · Comments Off 

Dr. Katz performed his echocardiogram late yesterday afternoon, and expressed to us that Hedi needs surgery soon for the large VSD – hole between the ventricles – in Hedi’s heart.
First though he must be well, and the doctor wanted him to have breathing treatments throughout the night and today for chest congestion and wheezing. The thought of staying there alone in this strange place with her sick child was overwhelming to Hedi’s young mother and she wept at that reality. He awoke this morning with his usual happy disposition. Through the day he continued to receive breathing treatments, which he lets everyone know he does not like one bit! But he did enjoy visiting with his good buddies Mustafa and Hussein who returned to the hospital from the SACH house for further tests.
Much to his mother’s disappointment, it was determined late this afternoon that Hedi needed to stay in the hospital again tonight to continue the breathing treatments until at least tomorrow. I felt it was safe to leave Hedi’s mother there tonight since she has made the acquaintance of other mothers and knows the routine, the nurses, and the layout of the children’s ward. It is tiring to care for her sick infant alone, and traumatic to consider what is ahead.

Hedi Hospitalized, and Winning Hearts

November 5, 2007 by · Comments Off 

After waiting in Amman for almost a month since the medical screening, Hedi finally received both visa clearance and sufficient funding (just past midnight!) to be brought over to X and hospitalized today. Hedi is sort of a celebrity-to-be, as the camera crew will follow through with his surgery and post-operation progress and feature him in an upcoming TV news story along with 2 of the other boys.

Being young and innocent has its advantages. While the other 2 boys screamed and cried the moment they were undressed to be weighed, Hedi was quite co-operative throughout the check-up, captivating the medical staff with his bright smile and cheerful playing. He started to join in the chorus of cries only when he felt the prick of the needle when his blood sample was taken.

After the echocardiograms were done, the doctor confirmed that Hedi should be immediately admitted to the ward for close monitoring, while Mustafa and Hussein were released to the Save a Child’s Heart house. Hedi’s mother started to sob out of fear being in unfamiliar surroundings and unable to speak the local languages, so a volunteer decided to spend the night with her at the hospital.

First Taste of Ice Cream

November 5, 2007 by · Comments Off 

Having spent the past month in Amman since the medical screening, Hussein finally arrived in Jordan today, together with Mustafa and Hedi. These boys appear so different from my first encounter with them during the one-day medical screening in Amman. Then, they were bursting out in tears each time I approached them with my camera but today, Hussein willingly handed me his ice cream to remove the wrapper and then readily posed for a picture licking his welcome gift!

The three boys were some sort of celebrities today, as a camera crew from a TV channel were also present to film their arrival for an upcoming feature.


Mustafa and Hussein have become the best of friends during the past weeks living together in Amman. They came through the arrival gates sharing a seat atop a luggage bag.

At the Wolfson hospital, Hussein had to go through the usual routine of being weighed and measured, and having his blood sample, x-ray and echo-cardiogram taken. To allay Hussein’s fear of the rubber glove which the medical staff would put on when taking the blood sample, the doctor inflated a rubber glove for him. Nevertheless, Hussein burst into the tears and screams the moment he was asked to lie down for the procedure.
 
This evening, Hussein and Mustafa were transferred to the Save A Child’s Heart house where they were warmly welcomed by the Iraqis presently staying there. Karwan’s mother promptly brought out some home-cooked rice, chicken and french fries for the tired group, who ate their dinner heartily and went to their room soon after for an early night.
 
Tomorrow, Mustafa and Hussein will return to Wolfson for more detailed medical checks.

Visas Approved, Travel Early Monday Filed by Donna Petrel

November 4, 2007 by · Comments Off 

Even little Hedi (center) understands this is good news: he and two other Iraqi boys who need urgent heart surgery are finally grasping their permission to enter their final destination for surgery.

Visas Issued, Travel Early Monday

November 4, 2007 by · Comments Off 

Hussein (right) may not realize it, but he’s holding his life in his hands: he and two other Iraqi boys who need urgent heart surgery are finally grasping their permission to enter Jordan.  Our staff starts rolling at 5 a.m. Monday from Amman, Jordan, to get them across the Jordan River and to the hospital in Jordan.  Watch this space tomorrow for a full update.

Full of Smiles

November 2, 2007 by · Comments Off 

Hedi, at eight months old, has shown the most obvious signs of the respiratory virus which has affected all the children and parents waiting in Amman. He has had a fever and cough, and because of a sore throat has not had much appetite. Besides this, he is also cutting teeth. But when we’re around Hedi, most of the time he is full of smiles and coos! The only time he cries is when he is so tired that he needs to sleep, but doesn’t want to miss out on the action of the bigger boys who are busily – and sometimes noisily – playing nearby.

Sometimes when I hold Hedi, I notice a change in his body as he begins to breathe rapidly and with exertion as his diaphragm is seemingly controlled by the pounding of his heart. Afterwards we’ve noticed he seems tired and almost dazed for a few minutes. Each time this happens when his mother is holding him she points it out to me, then sighs, as we wait for the day when this heart malady can be healed.

Both of Hedi’s parents are here in Amman since his father wants to stay with him and Hedi’s mother as long as he can before they travel for surgery. It is clear that they adore each other, and I believe having both mom and dad around is one of the reasons Hedi is so happy. Each of them play with him and he loves the attention. The other moms along with Hussein and Mustafa also give Hedi attention, so he does have plenty of reasons to smile.

Although there is an air of impatience in the apartment since all of the parents are ready to travel for the purpose of their journey, for the most part things are going smoothly. While we were visiting last night however, the difficult reality of their lives in Iraq seemed nearer when Hedi’s dad got a call from a friend in their city reporting that there had been a bombing there which had killed someone he knew. We sat in silence for a moment after expressing our sorrow, as Hedi’s father left the room. Again I noted to myself that these are remarkable people dealing with issues I cannot imagine, yet they put their lives on the line to get help for their children by going to a purported enemy to save their baby’s life. In the midst of everything they are gracious and willing to work together with us strangers in totally unknown surroundings and function without knowing what is next from day to day.  It will be difficult for this husband and wife to say good bye, and for this daddy to say good bye to his son, when the time comes for Hedi and his mother go to the hospital in X. Hopefully Hedi will soon be over this virus, so that when we go his surgery will not be delayed by it.

Easy to Please

October 28, 2007 by · Comments Off 

Hedi and two other Iraqi boys are waiting in Jordan following the October 9 screening by the doctors, who told us that these children need treatment urgently.  We hope to be able to transfer these little boys to the hospital this week, but until we can do that, they will stay in their latest ‘home away from home.’ While it was a little disconcerting to have to change their surroundings, especially for the adults, before long the two older children were happy on riding toys kept at the apartment.

When I visited the families again today, it seemed they were feeling more at home. I shared with them pictures of the progress so far whichsome of the other kids have made since arriving at the hospital less than two weeks ago. They asked many questions and I was able to help them see on the pictures as well as explain in person some of the things they want to know about what is about to happen. Ultimately though, I cannot tell them the timing of the travel (we still need both visas and funding for their surgeries) or of the surgery and the length of their stay.  It is with a mixture of thanksgiving for the opportunity and fear of the unknown that they approach our departure to the hospital in the coming days.

“I Don’t Mind Waiting”


October 28, 2007 by · Comments Off 

Hussein and two other Iraqi boys are waiting in Amman, Jordan following the October 9 screening by doctors, who told us that these children need treatment urgently.  We hope to be able to transfer these little boys to the hospital in Jordan this week, but until we can do that, they will stay in their latest ‘home away from home.’

When I visited the families again today, it seemed they were feeling more at home. I shared with them pictures of the progress so far that the kids currently in Jordan have made since arriving in Jordan less than two weeks ago. They asked many questions and I was able to help them see on the pictures as well as explain in person some of the things they want to know about what is about to happen. Ultimately though, I cannot tell them the timing of the travel or of the surgery and the length of their stay.  It is with a mixture of thanksgiving for the opportunity and fear of the unknown that they approach our departure to Jordan in the coming days.

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