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Successful Surgery for Deelan & Special Call for Lifesaving Funding
March 3, 2010 by Jeremy · Leave a Comment
It was all smiles after another successful heart surgery here in Istanbul. Deelan’s surgery was a “total correction” - though he is still in ICU on a treatment of nitric oxide to bring down the pressure in his lungs.
In addition to being a by-product of cigarette smoke and rush hour traffic - not to mention a body building supplement - nitric oxide is used in pediatric intensive care. From the source of all online wisdom, Wikipedia:
The endothelium (inner lining) of blood vessels uses nitric oxide to signal the surrounding smooth muscle to relax, thus resulting in vasodilation and increasing blood flow.
and
Nitric oxide is considered an anti-anginal drug: it causes vasodilation, which can help with ischemic pain known as angina by decreasing the cardiac workload. By dilating the veins there is less blood returned to the heart per cycle. This decreases the amount of volume that the heart has to pump.
Nitric oxide should not be confused with “laughing gas” - or, more officially, nitrous oxide - N2O.
Nitric oxide is also very expensive. In fact, we’ve had to use it already on Muhammed and Baroof. In addition to normal surgery costs (which is essential to repair the CAUSE of pulmonary hypertension), NO can undo the previous effects of the now-repaired cause. To fix the cause and not seek to reverse the effects is to leave the net outcome the same.
We spent $2,000 per child on nitric oxide, for a total of $6,000. As much as the surgery itself, this has really proven to be the stuff that saves lives. So today I’m going to ask that you find a way to give generously to the Lifesaving Nitric Oxide Fund to pay down Muhammed, Baroof, and Deelan’s additional costs and to pave the way for future children who will need this treatment.
 Molecule of the Year (1992), Nitric Oxide |
To save lives through the very specific provision of nitric oxide, please contribute your desired amount below. One container of nitric oxide costs us approximately $2,000. |
Follow Deelan on Twitter: @DeelanKameran. Subscribe to Deelan’s updates via RSS HERE. Follow Deelan’s thread of longer stories (with pictures & video) on the PLC blog HERE.
Deelan is Taken in for Time-Sensitive Surgery
March 3, 2010 by Jeremy · Leave a Comment
Deelan and his mom were a little unnerved this morning as they waited - and were eventually taken in to the operating room - for Deelan’s surgery to repair the massive hole in his heart and thereby decrease the life-threatening pressures in his lungs.
Meanwhile, back in Iraq, Deelan’s family waits with a lot of anxiety over the next few hours. This thing they’ve been longing for; this thing they’ve been working for - this surgery - is now a great unknown. It still stands as a beacon of hope for them, but now that it’s upon them, the realities of the risks set in in a way that was previously unknown and unanticipated.
Deelan should be out of surgery in 4-5 hours. More to come…
Follow Deelan on Twitter: @DeelanKameran. Subscribe to Deelan’s updates via RSS HERE. Follow Deelan’s thread of longer stories (with pictures & video) on the PLC blog HERE.
Total Correction for Muhammed!
February 25, 2010 by Jeremy · Leave a Comment
Doctors accomplished the total correction they were hoping for with Muhammed. But he came to us with extremely high pulmonary pressure (in his lungs) so the coming days in ICU will be incredibly important.
Special thanks to Erica Fischer of EMF Images for partnering with us to save Muhammed’s life. At the suggestion of EMF’s Erica Fischer, Cameron and Ben (left) donated the sitting fee for their engagement pictures to the Preemptive Love Coalition to help fund Muhammed’s surgery. This ongoing partnership with EMF promises to save a lot of lives in Iraq and engage the hearts of many who thought they were just signing up for EMF’s great photography!
We know there are hundreds of you out there doing amazing stuff like this to save lives. Sometimes we just don’t know what you’re up to! Contact us.
Follow Muhammed Adnan on Twitter: @MuhammedAdnan. Subscribe to Muhammed’s updates via RSS HERE. Follow Muhammed’s thread of longer stories (with pictures & video) on the PLC blog HERE.
Meet Muhammed (Twitter: @MuhammedAdnan)
February 24, 2010 by Jeremy · Leave a Comment
Muhammed’s presence in our life is a testament to the way the Preemptive Love Family Services Team has lived out our Core Values - namely, our pursuit of excellence (or constant improvement) and the way we seek to provide whole solutions for whole people. But all that sounds a little vague, so let me break it down…
In February 2009 a Kurdish soldier knocked on the door of our office. Though I hadn’t done anything wrong, I was sure I was about to be hauled in to give an account for something ridiculous. Thankfully, I was wrong. His name was Hywa and his daughter needed a life-saving surgery…. very urgently. We fast-tracked his family to surgery, but unfortunately he had already missed the optimal surgery window for his daughter when he first appealed to us. His little baby died in March 2009.
But Hywa and I formed a friendship that was somehow wrapped up in our mutual efforts to save his child’s life. When we put Honyar on that plane to Istanbul there was an initial feeling that we had both succeeded. And as I stayed back with him in Iraq, we cried together, somehow feeling like we had both failed that day she died. Of course, it was not the same grief for me as it was for him, and I would dishonor him to imply otherwise. But we celebrated, mourned, and grew together.
A few months later Hywa referred his friend Sami to us because Sami’s boy Danar was dying from a similar heart defect. We sent Danar to surgery in January 2010 and Danar can be seen doing really well after his surgery in our video of follow-up echos a few days ago.
After Danar returned from surgery, his father, Sami, referred Adnan to us because Adnan’s son is similarly facing death from extremely high pressure in his lungs as a result of two large holes in his heart.
Call it the “butterfly effect” or “serendipity” or “Providence” or a “job well done.” I’m really proud of our Family Services Team and all the work they’ve done to leave a lasting impact on families like Hywa, Sami, and… hopefully… little Muhammed’s family.
Follow Muhammed Adnan on Twitter: @MuhammedAdnan. Subscribe to Muhammed’s updates via RSS HERE. Follow Muhammed’s thread of longer stories (with pictures & video) on the PLC blog HERE.
*In accordance with PLC’s desire to lend a hand-up by avoiding strict hand-outs (when possible), Muhammed’s family told us they would sell their car to help their son and ultimately gave $6,500 towards PLC’s highly-discounted surgery prices.
Baby Muhammed Adnan Needs Urgent Surgery
January 23, 2010 by Jeremy · Comments Off
This little guy, Mohammed, came to see us in our office a few days ago (with his parents… not by himself). For a very sick baby, he is remarkably smiling and happy. He was such a joy to have in our office; brightened our day and inspired us to keep pushing forward in our life-saving, hope-giving work!
His parents are friends of little Danar Sami’s parents, whom we sent to surgery a few weeks ago. Mohammed’s father told us in our office last week that he will do whatever he can and is prepared to give all he has - $5,000 savings - to send his son to his highly urgent operation before rising pulmonary pressure leave him inoperable.
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Mohammed is scheduled for surgery in the next few weeks. We are urgently collecting money for his surgery because doctors say that waiting any longer may leave him inoperable, facing imminent death. What a chance to make a profound difference in the life of a child and his family! | |||
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ADOPT MOHAMMED’S HEALING
Donate the amount of your choice to Mohammed by entering it in the field below. All donations help the Preemptive Love Coalition send Mohammed (and any others in his group) to life-saving heart surgery.
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Zana Plays Football Two Months After Returning From ♥ Surgery
June 2, 2009 by Jeremy · Leave a Comment
In February Zana entered the Anadolu Sağlık Merkezi hospital in Istanbul, Turkey and underwent one of the most amazing, dangerous heart surgeries out there. Today, thanks to our partners at Kurdistan Save the Children, all of your kind Buy Shoes. Save Lives. purchases, and donations to PLC he is playing football like all the other kids in his neighborhood with barely a care in the world.
All these pictures are courtesy of the wonderful pro bono photographer Matt Addington and PLC’s Followthrough program, whereby we make sure that kids are not sent to surgery only to return to Iraq and be forgotten.
Heran Goes Into Surgery Looking Blue
May 28, 2009 by Jeremy · Leave a Comment
Heran on her way into surgery with very low blood-oxygen saturation.
She has emmerged from surgery and is recovering in ICU where her blood-oxygen levels are now at over 90%. That - and all other signs - say that she is doing well!
Photo: Matt Addington
Ahmad Out of Surgery! No More Blue Skin! All is Pink & Healthy!
February 17, 2009 by Jeremy · Leave a Comment
Ahmed is out of surgery. His oxygen levels are already up by 25%. His future is hopefully less blue and a more healthy pink. His dad is crying tears of joy.
Dr. Çiçek at the Anadolu Sağlik Merkezi was clear that this is not a long-term, fully corrective solution; but this first surgery should allow him to finally live long enough to receive the staged surgeries he’ll need over the coming years to actually live a fully functional adult life.
We’ll update with more information as soon as we know it.
Follow Ahmad’s daily updates on Twitter or via his RSS feed.
The Great Eight (Taban)
February 12, 2009 by Erin · Leave a Comment
After only 2 weeks in Iraq, working with families who’s children need heart surgeries to grow into adulthood, it was an exciting day to come face to face with two of these families and their children. Both families, whose children are 11 and 13 years old have known since birth that their children have serious heart conditions.
It was wonderful to be the bearer of such great news and tell Taban’s family, who has been waiting for 13 years to find a way to help cure their daughter, that she will be able to leave for surgery on Sunday. In just a few short days she will be on her way to Turkey where she will receive the heart surgery she desperately needs. I have been very touched by the kindness and devotion of these families to do whatever it takes to help their children get the surgeries they need. They are willing to entrust their children, their futures, and even invest their hope in us, The Preemptive Love Coalition.
As we shared several glasses of tea with them, they took the time to welcome me to their country and their village and thank me for leaving my home in America to come and help their children. Although these two children urgently need surgery, the Doctor reviewing their cases is very hopeful that their surgeries will be successful.
Not all of the children we have seen this week have as much hope for a full recovery, or even that they are eligible to receive surgery. And even in the midst of being the potential bearer of wonderful or terrible news for these families, I would not choose to be anywhere else in the world than here in Iraq sharing in the joy,
sorrow, hope, pain, and healing of these children and their families.
Valentine’s Day Focus: The Great Eight (Ahmad’s Condition)
February 2, 2009 by Jeremy · Leave a Comment
His great arteries are switched around and in the wrong places. He has two holes in the wall of his ventricle, a hole in the wall of his atrium. Effectively, his heart is a big balloon without properly functioning walls and chambers like yours.
This alone results in exhaustion, frequent fainting, and the blue discoloration in his lips, hands, and feet from a lack of oxygen.
You remember oxygen? That stuff that we pretty much need to live. Ahmad needs it too, but his body cannot process it correctly due to the holes in his little heart.
You can follow Ahmad’s progress on Twitter (twitter.com/ahmadbakhtiyar) or via RSS.
Giant Need
See Ahmad’s campaign page on our website to make a contribution to his surgery.
Small Voice
His brown-booted feet hung limply from the chair. Most children wouldn’t be able to resist swinging their suspended legs back and forth in the quiet room surrounded by the seven dwarfs’ familiar faces, the Kurdish curls presumably spelling the names of Dopey and Sneezy and the rest, scattered among painted forest animals on all four walls of Dr. Aso’s combined office, waiting room and examination room. When the doctor was ready, the practiced hands of his mother removed his jacket from his tiny body, his boots from little clubbed blue feet which matched his hands, tormented eyes watching her above his oxygen deprived lips the shade of blueberries.
The doctor’s eyes widened and his brow furrowed as he looked at the Echo, turned to us and said, “This is a very serious case.” When we asked if he was inoperable the doctor shook his head and simply said again, “It is a very serious case…. I don’t know.” Whether she understood English or not Ahmad’s mother read all our expressions easily. She tipped her head to the heavens, possibly to pray, and more practically to give her eyes the opportunity to swallow the tears threatening to escape.
After the picture we snapped of him standing in front of a Kurdish Snow White & the Seven Dwarves, he hid his little face in his mother’s leg and wiped tears from his eyes…
Liz searched her purse for the third time looking desperately for something to give this poor child. She hoped a matchbox car or at least some stickers had magically appeared since she’d last checked, but her hands came up empty again. Her mind slowly absorbed the fact that even if a toy might have brought a temporary smile to his sad eyes, it would do nothing for his frail body. Instead she prayed for the Turkish doctor who will soon undergo the difficult task of setting to rights all that is wrong in Ahmad’s little Iraqi frame.
We’d like to ask you to be a part of Ahmad’s transformation. Of course, these are hard times. But if you can, please consider sacrificing that Ahmad might live.
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