“[PLC] understands our problems but the number of aid groups is little compared to the number of patients that there is. There are a lot of children suffering from this disease. Sometimes here it depends on luck. We were lucky that a group came and helped us out. But I see daily lots of people suffering from disease…. I’m not saying the aid group did not help me; they did a great job for me. I just hope there will be more organizations to help.”
